There's an exciting new website doing the rounds of the breast cancer blogosphere: KomenWatch.
I received a press release late last week, and was going to blog about it in more detail after my review, but Katie at Uneasy Pink beat me to it.
Read Katie's post "KomenWatch" which I think articulates very well why this website is going to be one to watch. I really couldn't have said it better myself!
In my humble opinion, the website looks to be a fantastic resource for Komen-related discourse and contains an archive of many critical articles written about Komen since the early 1990's, including my "Komen By The Numbers" series! I particularly like the "Agenda for the Future" section which lays out a vision for what the breast cancer advocacy movement should look like in a perfect world, and what Komen could do to align itself with that vision.
It's good to know that there are many other people asking questions of the Komen organization, and let's just hope that someone at Komen is listening and taking notes.
Check it out when you get a moment, and be sure to read the opening blog post on the home page, "What We Still Don't See". Brilliant!
Dr. Epstein seems to be the "American Cancer Society Watch." How depressing. And these are "big" outfits. What about "Breast Cancer Society?" They seem to telemarket, probably hoping people will confuse them with a more respected group. It's not clear what they actually do. A Google search yielded many allegations of scams, fraud, etc.
Katherine - I think all of this is just the tip of a very dirty, smelly, pink iceberg. I know questions have been asked about the ACS for years, and it appears to be another one of these "untouchable" institutions. But maybe not anymore given the rise of social media. People are starting to ask questions AND demand answers. Sooner or later these big outfits are going to have to come to the table and hold themselves accountable.ReplyDelete
I checked out KomenWatch after reading Katie's excellent posting, and I am, indeed, impressed.
The problem with such a big organization is that it really is hard to discern what the heck is going on in there. The same thing with the ACS. I donate to Sloan-Kettering, and I'm hoping the money has been going to research.
I think what's going on in social media is akin to the civil rights movement in that a group of people are questioning big institutions, the powers that be.