Saturday, October 1, 2011

Breast Cancer Awareness Jersey Shore Style!

As you're all too well aware the last month or so for me has been particularly difficult in dealing with my illness.  Living in the suburbs of New Jersey,  life can feel a little bit lonely sometimes, and I'm so thankful for all the support I receive from my cyber-community, as well as the unending support from family who continue to just be there for me in more ways than I can count.

But from a societal standpoint, and as someone living with the never-ending challenges of a metastatic cancer diagnosis, I often wonder why it is that I continue to just feel this unnerving sense of isolation and increasing dread that there is very little understanding by the ordinary person of the realities of what a breast cancer diagnosis really means.

I guess this item, received in my mailbox this week, brought it all home, and eureka I got it!

This is how "In Jersey / Jersey Shore Magazine" depicts what they think is important for the women of the Jersey Shore area to know about breast cancer.

First the cover of their "Special Breast Cancer Awareness Issue".



Second, the contents.



On page 32 we learn about Pat Battle surviving (past tense) her "battle" (nice use of double entendre) with breast cancer.  Another celebrity breast cancer story.  Funny how they all seem to be good news stories;  about how their mammograms saved their lives, and how they've all gone on to embrace the mantle of triumphant survivor after so-called successful treatment.  And that's the end of the story, as is always the way.  I guess no one wants to read a bad news story, say about a metastatic breast cancer diagnosis?  Might not be needing the pink pashmina for that photo shoot.  Or hair. Or breasts. Or ovaries.  Or other body parts or organs or other semblances of normal life you might be fond of.

On page 42 we get what is essentially an advertorial for Dr Deutch's marvellously innovative and oh-so-cosy breast imaging center called HerSpace. Poignantly, we're informed that Dr Deutch also recently went through her own breast cancer crisis, but details are scant at the behest of the good doctor, as she wants to focus on her patients.  Patient focus is a good thing especially when "Deutch does describe her practice as a "niche" practice because it operates on a fee-for-service basis, meaning it doesn't accept Medicare or private insurance plans."   That "story" got 5 pages out of a 63-page issue.

On page 52 we're treated to a Tickled Pink fashion spread of glossy made-up survivors in their breast cancer charity of choice t-shirts and then bedazzled in all manner of pink ribbon accessories and jewellery all available for purchase at listed stockists. As for the copy; here's my personal favorite..."showcased here in an array of pink items, they show a verve and vitality that is the essence of the spirit of all survivors...." Nothing says verve and vitality like a $139.95 Sparkle Strong Breast Cancer Survivor Necklace I guess!

And last but not least, "Amazing Beauty Tips for Chemo Girls", where two local women have co-authored a book (available for purchase from Amazon and the like) chock full of beauty pearls of wisdom for all us "chemo girls".  Shame on me. I hadn't really thought about pencilling my eyebrows in today.  But I do hope they have a tip for dealing with the thrush that has taken up residence in my mouth this week.  How can you get that just squeaky clean feeling when your mouth is coated in white crap, and ulcerated from the side of your mouth to halfway down your throat? Will I still be able to wear lipstick?

The point about this snarky post is important.  This is what we; women; are being fed on an almost daily basis with respect to breast cancer awareness, and examples like this magazine, contain absolutely not one iota of useful, educational, scientific, newsworthy, actionable, impartable or realistic information about breast cancer, period. But there were plenty of coupons for pink products and lists of stockists.  And this magazine goes out to every household in my county and surrounding areas!  How have we let "breast cancer awareness" come to this? No wonder we're not getting anywhere in the fight to eradicate this disease.

Meanwhile this week, as well as railing against this magazine, I've been dealing with the gift of steroid-induced myopathy and a nasty case of thrush in my mouth also as a result of the steroids that I had to take for radiation.  So now as well as occupational therapy for my hand, I must also start a course of intensive physical therapy to regain the strength back in my lower body and leg muscles which have withered away to practically nothing.

And I haven't even started my new chemotherapy yet.  I'm saving that fun for next week. What will I wear?

Perhaps all I need is a full face of makeup, and all of this can just go away with a poof of a pink pashmina and a sparkly pink ribbon trinket.  Battle won.  We're all aware.  We're all survivors.  Fist pump!

23 comments:

  1. Rach...
    When I started blogging in July, it was to poke fun at the stupidity that takes form in my life and while I still may poke fun at some of the stupidity, the blog spurred me to begin volunteering my time. I learned so many lessons in such a short time. Please know this. it took years for the core of this DISEASE to be covered in pink. I DO promise that I am using my "survivorship" to be the voice of the forgotten. It sickens me to see the pink waving and smiling faces when I know how you are struggling. You may not know me, but I do care. Everything that is happening to you touches me deeply. You are in my thoughts always.
    AnneMarie

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  2. This is *exactly* it.... it's not surprising that people have such little understanding of what a bc diagnosis means. Because - yes - this is what they are fed on, this is how they perceive treatment to be.
    Once again, Rach, your snark gets the message loud and clear, and you so unsentimentally relate your own situation as a stark contrast to the "chemo girls" in pink pashminas.
    Bravo.
    Sarah

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  3. Thanks so much for this wonderful comment AnneMarie...."the voice of the forgotten"......that is a very powerful commitment...thank you.

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  4. Sex, pretty people and hopeful stories sell magazines, not the debilitating and frightening realities of Stage IV cancer. We, on our blogs, are telling the other side of breast cancer. That, in and of itself, should be "the" cover story on any magazine! Many thanks to Liz Szabo at USAToday for responding to my suggestion to do a story about "pink washing." Actually, she's done two stories in the last month. Perhaps we can get her interested in the ugly side of breast cancer no one wants to talk about.

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  5. Here's the cover line for the next issue:

    Gym, tan, lobotomy....

    Yeesh! I wonder if they are on FB? We should all go and show our "verve and vitality" .

    Thanks for writing this.

    Rock on

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  6. Let's all promise to BOYCOTT BC Pink and ask all our friends to do the same. Let them put the REAL PICTURES of BC on the front cover and they will collect millions out of people SHAMED not to have done something before this.

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  7. I want to go up to a "make up" counter full of pink ribbon sh*t at a store and unbutton my shirt and tell them I'm a breast cancer survivor and ask them what they can do with "this" and smile.

    class dismissed

    xo
    DC

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  8. These "special awareness issues" are rampant, and full of such hype. You've nailed it, Rachel. This has to stop!

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  9. I used to live in New Jersey. I even used to work in women's publishing. This pinked-out piece of [fill-in-the-blank]? O. M. G.

    Like so many others, I never understood how being "pink'd" felt to a BC survivor — until I became one myself.

    We (the BC community) are the only ones who can put a real face on BC. We're the only ones who can turn the tide of pinkness in our favor. And I think we're doing a helluva job! Change is happening. I can feel it.

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  10. I have some photos I'll post for you on Twitter. A special section (guess what color) was published last TUESDAY,which was Sept. 27 on my calendar.

    Sending you love and tons of admiration for your ability to keep finding humor where you can --
    jms

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  11. I've missed you Rachel. xoxo

    I trust you're wearing your pink pumps.

    Katie

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  12. Rachel - You nailed it on that magazine. This upcoming Wednesday will be 19 years since my diagnosis and you have opened my eyes in the past year to the insanity out there.

    I hope you don't mind - I linked to your brilliant Pink Booby Awards in my column for nj.com.

    http://www.nj.com/parenting/guest_bloggers/index.ssf/2011/10/pinktober_a_mother-survivors_g.html

    I'm another Jersey girl- I am thinking of you. Keep up your wonderful writing. Joan

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  13. I hear you - don't ever stop talking about this... the media absolutely screwes the carcinoid cause when it claimed Steve Jobs had a "benign" form of cancer called neuroendocrine cancer - that is easily curable with a simple surgery. Over and over again, they reported he was cured - I wonder when he dies if the truth will ever come out... if not, I have a list of carcinoid patients who have died this year from this "benign" cancer... hopefully my name will stay off of that list for a long, long time. Your blog gives me hope and courage.

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  14. Thank you for this post. You hit it on the head with your statement, "No wonder we're not getting anywhere in the fight to eradicate this disease."

    For the life of me, I cannot figure out why there continues to be this desire to downplay the seriousness of this disease. And my new mantra this month is. "Turning everything pink is just not good enough any more!"

    Good luck with chemo this week. I'll be thinking of you.

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  15. Thank you for another great post.

    The juxtaposition of your comment here...:

    "But from a societal standpoint, and as someone living with the never-ending challenges of a metastatic cancer diagnosis, I often wonder why it is that I continue to just feel this unnerving sense of isolation and increasing dread that there is very little understanding by the ordinary person of the realities of what a breast cancer diagnosis really means."

    ... with the visual of the cover of the "magazine" (ummm...the whole thing sounds like an advertorial) says it all.

    Keep on writing. You are at the vanguard. You are being heard and inspiring others.

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  16. I've found it rather entertaining that none of the breast cancer survivors I know (including my mother) are remotely interested in all of the "buy pink" stuff that comes out each year.

    Anyway, thanks for your post. It was refreshing to read after all of the rah-rah propaganda in the women's magazines this month.

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  17. rachel, rachel, rachel.

    you are right.

    and i adore you.

    that is all.

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  18. OMG. Just OMG.

    I don't have breast cancer, but it's enough that advertisers think I'm so stupid that a pinkwash will make me suspend my judgment about what I buy and what charities deserve my support.

    I don't buy pink crap and whenever I walk into a store with a pink display, I email the manager explaining why I don't buy pink and won't buy anything from the store while the pink is displayed. I suggest they donate money to Dr. Susan Love's foundation or other group funding metastasis research.

    Today driving home, I heard a radio spot in which a woman chirps "Yesterday, I was diagnosed with breast cancer. Today, I'm starting my cure at XXX B-List Medical Center." Guess I have another email to send....

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  19. Great post..you may be interested in checking out this thoughtful list on ways to observe breast cancer awareness month created by Hello Ladies. It's a pretty awesome resource..thought you'd appreciate it.

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  20. Comment from Kathleen Kolb: Just wanted to say I think you may have helped my beleaguered snark to wake up a little with your latest post. And feel free to post this email as a comment if you can. I envision a breast cancer version of "Real Housewives of New Jersey" -- [evil chuckle].

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  21. I love this post. While I was going through chemo and deciding how much breast to lop off, nothing felt pink and victorious. My heros are the women who had a mastectomy and did NOT reconstruct, women who wear the scar of breast cancer proudly.

    Good luck with your chemo.

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  22. Prevention and early detection is the best way of fighting breast cancer. Breast Cancer Awareness month is here and it is great to bring awareness to it regardless of the way it is brought to people's attention. Whether it is from participating in a walk, updating your facebook status, or by wearing a breast cancer ribbon , ny effort made to help bring awareness and help find a cure for this disease is a help in many ways.

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